The MAGIC foundation for children's growth is an American non-profit organization which helps families of children diagnosed with a wide variety of different growth impacting medical conditions through education, networking, physician referrals and numerous other services. It is parent founded (1989) and maintained through a network of volunteers and a full time staff of five people. MAGIC is short for Major Aspects of Growth In Children.
The foundation has a membership network in excess of 25,000 families. The disorders MAGIC families have are grouped into primary categories. They include: congenital adrenal hyperplasia, precocious puberty, growth hormone deficiency (both adults and children), panhypopituitarism, McCune-Albright syndrome, Turner syndrome, Russell-Silver syndrome, thyroid disorders (both congenital and acquired), optic nerve hypoplasia, and other rare disorders.
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Educational programs Edit
MAGIC offers an educational program every year for the families of affected children and another for affected adults. Physicians specialising in these disorders, from all over the world, volunteer to speak to and assist the children and affected adults.
The MAGIC Foundation received significant funding from Genentech and Eli Lilly to undertake case finding of children with short stature who might benefit from their human growth hormone treatments. The US Food and Drug Administration investigated Genentech in 1992 and 1994 for using the MAGIC Foundation to improperly advertise this medication.
- ↑ Betty M. Adelson (2005), Dwarfism: medical and psychosocial aspects of profound short stature, JHU Press, pp. 197–, Template:Citation/identifier, http://books.google.com/books?id=LtRp4zxRlRYC&pg=PA197#v=onepage&q=MAGIC%20foundation&f=false, retrieved 14 April 2010
- ↑ Kathleen Day (16 August 1994), "Genentech, Nonprofit Link Studied; Agencies Probe Whether Foundation Helped Sales", The Washington Post (Washington, D.C.)